Emotions Around Dementia

Emaww.com Emotion Matter Podcast Zoe Harris Emotions Around Dementia


Ever since her husband was diagnosed with dementia, Zoe Harris has been researching the issue and discovering new ways of helping those living with dementia. Listen to what she had to say about her research and how important role do emotions have around all this. 

Q1-02:03: Zoe, you’ve started your research after you’ve seen your husband living with dementia.Do us a favor, tell us how did you go through that at the beginning?

Q2-04:09: What’s the difference in your approach before and after your research?

Q3-08:18: You’ve mentioned earlier that your children were 10 and 12 when it all started. How did they deal with their father living with dementia?

Q4-09:43: Did your children ultimately come around and have the ability to provide LOVE, SUPPORT, and CARE from your children, even they were very young at the time?

Q5-11:20: How quickly did you husband move in through stages?

Q6-14:52: The personal time clock change is something we experienced with my mother as well. Did your husband go through any of that?

Q7-16:30: Did he have other interests, hobbies and other things that kept him sort of going?

Q8-19:03: Do you think that that exasperated some frustration for him?

Q9-19:28: People living with dementia are still able to feel emotions, but cannot express them. Why is it so important for caregivers to remember this fact?

Q10-21:43: Your care charts are created to remind caretakers that the patient they’re dealing with is a person, not just a job. How does this help with awakening EMPATHY in caregivers and result in better care for the patients?

Q11-25:44: You’ve mentioned the staff. Let’s dive in a little bit into the Mycarematters website, talk us through that and how does that help healthcare professionals deal with and better accommodate and care for persons living with dementia

Q12-29:00: We have a question from one of our listeners who wanted to remain anonymous. They are also dealing with a close family member who is living with dementia and they want to know how to deal with the “emotional roller-coaster” they’re having. They get irritated, they get sad and cry; they feel love for the person they take care for, etc. Is there a catch, something that can help?

Q13-31:39What should we expect from you in near as well as far future? Any major plans you’re having at the moment?


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Zoe Harris is a speaker, innovator, social entrepreneur, seeking solutions to help communicate a person’s needs when they are unable to express those things for themselves.

When her late husband developed dementia, Zoe wanted to find ways to improve the quality of his care, first of all at home and during stays in hospital and then for the final thirteen months of his life in a care home. One outcome of that experience was the range of award-winning Remember-I’m-Me Care Charts which have been adopted by over 1,000 care homes, hospitals, domiciliary agencies and individuals, ensuring that all those interacting with a person unable to communicate their needs are aware of their needs and preferences.

As hospitals started to take an interest in the care charts, Zoe realized that one of the challenges they face is collecting the information to go on the chart in the first place. So she developed Mycarematters, an online platform where people, or someone on their behalf, can upload the information healthcare professionals need in order to treat the whole person and not just their medical condition. Their Mycarematters record can then be available to hospital staff from the minute they are admitted.
Mycarematters also has the potential to play a role in reducing social isolation and to provide those people not yet online a gentle way to start using the internet.

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